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Roll through NYC with TEAM DEBRA on Sunday May 1, 2022 as we ride in the TD Five Boro Bike Tour! The 40-mile course will take cyclists from around the world on a tour of all five boroughs of NYC. Help TEAM DEBRA fulfill it's mission and end Epidermolysis Bullosa (EB), "the worst disease you've never heard of".
Interested in the 2022 TD Five Boro Bike Tour? Email teamdebra@debra.org or call (212) 868-1573 x 102 to learn more.
To support a cyclist or a team please enter the cyclist's name or the team name below.
TEAM DEBRA in the 2021 TD Five Boro Bike Tour
Cyclist Benefits:
Cyclist Expectations:
What is EB?
Epidermolysis Bullosa, or EB, is a rare connective tissue disorder with many genetic and symptomatic variations. All types of EB share the major symptom of extremely fragile skin that blisters and tears from the slightest friction or trauma. Internal organs and bodily systems can also be seriously affected by the disease. EB is always painful, often pervasive and debilitating, and is in some cases lethal before the age of 30. There is currently no cure or treatment for EB. Pain management, wound care, and preventative bandaging are the only options available.
There are about 25,000 people living with EB in the US. It occurs in every racial and ethnic group and affects both genders equally. For a more in-depth and comprehensive understanding of EB, please also check out debra of America’s explanation by clicking here.
What is debra of America?
Because the cost of doing nothing is too great. This axiom defines debra of America's mission and directs all that we do. We are dedicated to improving the quality of life for those living with EB. To achieve our mission, we do two things in parallel: we provide free programs and services to the EB Community in the US, and fund the most innovative research directed at symptom relief and a systemic cure.
In 2017 alone, our largest program, the Wound Care Distribution Program, sent over $1 Million worth of specialized bandages. That translates to over 108,000 pieces of wound care sent to families across the US. Our research funding identified the genetic basis of EB and supports the science, which is at the forefront of gene and stem cell therapy, RNA repair, protein replacement, and inhibition of squamous cell carcinoma.
Progress
Leaderboard
Contact Us
Interested in joining TEAM DEBRA? Email us at teamdebra@debra.org or call (212) 868-1573 x 109.
View our website to learn more about debra of America and EB.
2022 TD Five Boro Bike Tour
Sunday, May 1, 2022
2022 TD Five Boro Bike Tour
Sunday, May 1, 2022
2022 TD Five Boro Bike Tour
Sunday, May 1, 2022
You're all set. A copy of your receipt will be emailed to you.