Please join us for the ninth annual dash4debra! Megan Gosselin is hosting this day of fun for the entire family as we race to raise money in the name of EB on the Lake Forest Academy track. Let's run laps for EB! Run or walk - pick your own pace & distance. Miles will be counted and money will be raised! This is a kid friendly event (under 5 are free), stroller and wheelchairs are allowed. Please, no dogs.
Join us Sunday, August 27 at Lake Forest Academy at 9:00 a.m!
The money raised for this event will go to support research, provide medical supplies to families and patient access to specialists. Many patients with EB travel out of state for care and support, and many insurances do not cover the supplies needed for these patients' care. debra of America is the only national nonprofit organization dedicated to funding research and providing supportive services and programs for those with EB.
Since it's inception, dash4debra has raised over $250,000 to support debra of America's programs and services for the EB Community - thank you!
What is EB?
Epidermolysis Bullosa, or EB, is a rare connective tissue disorder with many genetic and symptomatic variations. All types of EB share the major symptom of extremely fragile skin that blisters and tears from the slightest friction or trauma. Internal organs and bodily systems can also be seriously affected by the disease. EB is always painful, often pervasive and debilitating, and is in some cases lethal before the age of 30. There is currently no cure or treatment for EB. Pain management, wound care, and preventative bandaging are the only options available.
There are about 25,000 people living with EB in the US. It occurs in every racial and ethnic group and affects both genders equally. For a more in-depth and comprehensive understanding of EB, please also check out debra of America’s explanation by clicking here.
What is debra of America?
Because the cost of doing nothing is too great. This axiom defines debra of America's mission and directs all that we do. We are dedicated to improving the quality of life for those living with EB. To achieve our mission, we do two things in parallel: we provide free programs and services to the EB Community in the US, and fund the most innovative research directed at symptom relief and a systemic cure.
In 2017 alone, our largest program, the Wound Care Distribution Program, sent over $1 Million worth of specialized bandages. That translates to over 108,000 pieces of wound care sent to families across the US. Our research funding identified the genetic basis of EB and supports the science, which is at the forefront of gene and stem cell therapy, RNA repair, protein replacement, and inhibition of squamous cell carcinoma.
On behalf of debra of America, thank you for your generous support of the
2022 dash4debra! A copy of your receipt will be emailed to you.
Please visit http://doublethedonation.com/debra to check if your employer has a Matching Gift Program. Matching gifts may double or even triple your contribution’s impact.
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