Loading....
Join TEAM DEBRA on Sunday October 1, 2023 at the Medtronic Twin Cities Marathon! The Medtronic Twin Cities Marathon is the community's signature running and fitness event, over four decades strong. debra of America is pleased to announce that we have slots in the Marathon and the 10 mile race! Help TEAM DEBRA fulfill its mission and end Epidermolysis Bullosa (EB), "the worst disease you've never heard of". Interested in running? Email teamdebra@debra.org or call (212) 868-1573 x 102 to learn more.
To support a runner or a team please enter the runner's name or the team name below.
Runner Benefits:
Runner Expectations:
What is EB?
Epidermolysis Bullosa, or EB, is a rare connective tissue disorder with many genetic and symptomatic variations. All types of EB share the major symptom of extremely fragile skin that blisters and tears from the slightest friction or trauma. Internal organs and bodily systems can also be seriously affected by the disease. EB is always painful, often pervasive and debilitating, and is in some cases lethal before the age of 30. There is currently no cure or treatment for EB. Pain management, wound care, and preventative bandaging are the only options available.
There are about 25,000 people living with EB in the US. It occurs in every racial and ethnic group and affects both genders equally. For a more in-depth and comprehensive understanding of EB, please also check out debra of America’s explanation by clicking here.
What is debra of America?
“Because the cost of doing nothing is too great” is an axiom that defines our mission and directs all of debra of America’s actions as an organization. We are dedicated to improving the quality of life for those living with EB. To achieve this, we do two things in parallel: we develop and execute programs and free services for the EB Community in the U.S., and fund the most innovative research directed at symptom relief and a systemic cure.
In 2022 alone, over $1 million worth of wound care supplies were distributed to those with Epidermolysis Bullosa through debra of America’s Wound Care Distribution Program.
,
Get in touch! or
© Copyright 2022, debra of America, All Rights Reserved | The Dystrophic Epidermolysis Bullosa Research Association of America, d/b/a debra of America is a registered 501(c)(3) tax exempt organization. | All Trademarks and Brands are Property of Their Respective Owners. debra of America does not endorse any drugs, tests, or treatments that we may report. This website is for informational purposes, always check with your physician before adopting any medical treatment. | EIN: 11-2519726
2023 Medtronic Twin Cities Marathon
Sunday, October 1, 2023
,
Get in touch! or
© Copyright 2021, debra of America, All Rights Reserved | The Dystrophic Epidermolysis Bullosa Research Association of America, d/b/a debra of America is a registered 501(c)(3) tax exempt organization. | All Trademarks and Brands are Property of Their Respective Owners. debra of America does not endorse any drugs, tests, or treatments that we may report. This website is for informational purposes, always check with your physician before adopting any medical treatment. | EIN: 11-2519726
2023 Medtronic Twin Cities Marathon
Sunday, October 1, 2023
,
Get in touch! or
© Copyright 2021, debra of America, All Rights Reserved | The Dystrophic Epidermolysis Bullosa Research Association of America, d/b/a debra of America is a registered 501(c)(3) tax exempt organization. | All Trademarks and Brands are Property of Their Respective Owners. debra of America does not endorse any drugs, tests, or treatments that we may report. This website is for informational purposes, always check with your physician before adopting any medical treatment. | EIN: 11-2519726
2023 Medtronic Twin Cities Marathon
Sunday, October 1, 2023
You're all set. A copy of your receipt will be emailed to you.