2023 Dublin Marathon

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Join debra of America for the 2024 Irish Life Dublin Marathon. The Dublin Marathon is the 4th largest marathon in Europe which attracts over 25,000 participants from over 60 countries. The 26-mile route known for its flat course takes runners throughout the historic city of Dublin. Help TEAM DEBRA fulfill its mission and end Epidermolysis Bullosa (EB), "the worst disease you've never heard of." Interested in running in the 2024 Dublin Marathon? Email teamdebra@debra.org or call (212) 868-1573 x 102 to learn more. Guaranteed Entry and Bib Number with a fundraising minimum of $2,500.

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Runner Benefits:

Guaranteed Entry and Bib Number
Run to cure EB
Easy-to-Use Fundraising Page
TEAM DEBRA Athletic Apparel to Wear on Race Day

Runner Expectations:

Raise a minimum of $2,500
Personalize and Promote Personal Fundraising Page
Communicate with debra of America Staff

WHAT IS EB?
Epidermolysis Bullosa (EB) is a group of rare disorders caused by a mutation in one of 18 genes. People with EB share the lifelong challenge of extremely fragile skin that blisters and tears from minor friction or trauma. The list of medical complications EB causes may be long and often requires multiple interventions from a range of medical specialists. There is no cure for EB but there are treatments that help alleviate some of the debilitating symptoms of certain types of EB. debra of America’s work led to the groundbreaking U.S. FDA approval of the first two treatments for EB in 2023. To learn more please visit here.

WHAT IS DEBRA OF AMERICA?
Our mission is to improve the lives of those impacted by Epidermolysis Bullosa (EB) — “The Worst Disease You’ve Never Heard Of.” We integrate
direct-to-patient programs and services, education, advocacy, close partnership with treatment developers, and research funding to foster meaningful change for those living with EB. Each year, debra of America spends an average of $1.5 million on direct-to-patient programs and services to provide immediate relief to thousands
of families across the country.

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Leading nonprofit supporting people living with Epidermolysis Bullosa (EB).

debra of America is a national nonprofit organization dedicated to improving the lives of people with Epidermolysis Bullosa (EB) through supportive programs and funding the most innovative research for treatments and a cure. Explore further to learn how we help those with EB and their families and how you can get involved in our mission.

ABOUT DEBRA OF AMERICA

$1.5 Million

The average dollar amount spent each year on direct-to-patient
programs and services.

U.S. FDA-Approved Treatments

debra of America's work has led to the historic U.S. FDA approval of the first and second treatment for Epidermolysis Bullosa (EB).

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Leading nonprofit supporting people living with Epidermolysis Bullosa (EB).

$1.5 Million

U.S. FDA-Approved Treatments

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