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Welcome to Fundraiser First Name's Fundraising Page
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Please join me in raising funds and awareness for debra of America and the EB Community. Your support makes a difference! Click the donate button at the top or bottom of this page to contribute. Every donation, no matter the size, helps bring us closer to a cure for "The Worst Disease You've Never Heard Of."
I run for EB because...
- 25,000 people in the U.S. face the daily challenges of EB.
- Up to 75% of their bodies can be covered in painful, un-healing wounds.
- Families spend an average of $10,000 per month on specialized bandages.
- Some with EB require 7 surgeries each year just to manage the disease.
- Tragically, 22% of children born with EB in 2014 are no longer with us.
This is why we rely on the generosity of people like you—because the cost of inaction is simply too high.
Watch the video below to learn more about Asa, a sweet and courageous boy who sadly lost his battle with EB.
Thank You For Helping Me Make a Difference!
W H A T I S E B?
Epidermolysis Bullosa (EB) is a group of rare disorders caused by a mutation in one of 18 genes. People with EB share the lifelong challenge of extremely fragile skin that blisters and tears from minor friction or trauma. The list of medical complications EB causes may be long and often requires multiple interventions from a range of medical specialists. There is no cure for EB but there are treatments that help alleviate some of the debilitating symptoms of certain types of EB. debra of America’s work led to the groundbreaking U.S. FDA approval of the first two treatments for EB in 2023. To learn more please visit here.
W H A T I S D E B R A O F A M E R I C A?
Our mission is to improve the lives of those impacted by Epidermolysis Bullosa (EB) — “The Worst Disease You’ve Never Heard Of.” We integrate direct-to-patient programs and services, education, advocacy, close partnership with treatment developers, and research funding to foster meaningful change for those living with EB. Each year, debra of America spends an average of $1.5 million on direct-to-patient programs and services to provide immediate relief to thousands of families across the country.
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Make a donation to Fundraiser First Name Fundraiser Last Name
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Fundraiser First Name Fundraiser Last Name
Please join me in raising funds and awareness for debra of America and the EB Community. Your support makes a difference! Click the donate button at the top or bottom of this page to contribute. Every donation, no matter the size, helps bring us closer to a cure for "The Worst Disease You've Never Heard Of."
I run for EB because...
- 25,000 people in the U.S. face the daily challenges of EB.
- Up to 75% of their bodies can be covered in painful, un-healing wounds.
- Families spend an average of $10,000 per month on specialized bandages.
- Some with EB require 7 surgeries each year just to manage the disease.
- Tragically, 22% of children born with EB in 2014 are no longer with us.
This is why we rely on the generosity of people like you—because the cost of inaction is simply too high.
Watch the video below to learn more about Asa, a sweet and courageous boy who sadly lost his battle with EB.
Organization Name
Org Address Line 1 Org Address Line 2
Org City, Org State Org Zip
Need help? Org Email
Fundraiser First Name Fundraiser Last Name
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Thank You!
Thank you for your generous donation. Please share my fundraiser with your friends, and come back to this page to see updates on my progress.
Fundraiser First Name Fundraiser Last Name
Please join me in raising funds and awareness for debra of America and the EB Community. Your support makes a difference! Click the donate button at the top or bottom of this page to contribute. Every donation, no matter the size, helps bring us closer to a cure for "The Worst Disease You've Never Heard Of."
I run for EB because...
- 25,000 people in the U.S. face the daily challenges of EB.
- Up to 75% of their bodies can be covered in painful, un-healing wounds.
- Families spend an average of $10,000 per month on specialized bandages.
- Some with EB require 7 surgeries each year just to manage the disease.
- Tragically, 22% of children born with EB in 2014 are no longer with us.
This is why we rely on the generosity of people like you—because the cost of inaction is simply too high.
Watch the video below to learn more about Asa, a sweet and courageous boy who sadly lost his battle with EB.
Organization Name
Org Address Line 1 Org Address Line 2
Org City, Org State Org Zip
Need help? Org Email