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You're invited to the 11th Annual dash4debra!
Hosted by Megan Gosselin, this fun-filled family event brings the community together to raise funds and awareness for EB, one lap at a time on the Lake Forest Academy track. Whether you choose to run or walk, you set your own pace and distance. Every mile makes a difference!
This event is kid-friendly (children under 5 participate for free), and strollers and wheelchairs are welcome. We kindly ask that you leave dogs at home.
Join us on Sunday, August 24 at 9:00 a.m. at Lake Forest Academy. Let’s run (or walk) for EB!
Proceeds from this event will help fund critical research, provide medical supplies to families, and improve patient access to EB specialists. Many individuals living with EB must travel out of state for care, and often, insurance does not cover the specialized supplies they need. debra of America is the only national nonprofit solely dedicated to supporting the EB community through research funding and vital programs and services. Since it began, dash4debra has raised over $335,000 to support debra of America’s mission, thank you for being part of this impact!
W H A T I S E B?
Epidermolysis Bullosa (EB) is a group of rare disorders caused by a mutation in one of 18 genes. People with EB share the lifelong challenge of extremely fragile skin that blisters and tears from minor friction or trauma. The list of medical complications EB causes may be long and often requires multiple interventions from a range of medical specialists. There is no cure for EB but there are treatments that help alleviate some of the debilitating symptoms of certain types of EB. debra of America’s work led to the groundbreaking U.S. FDA approval of the first two treatments for EB in 2023, and the third treatment this year. To learn more please visit here.
W H A T I S D E B R A O F A M E R I C A?
Our mission is to improve the lives of those impacted by Epidermolysis Bullosa (EB) — “The Worst Disease You’ve Never Heard Of.” We integrate direct-to-patient programs and services, education, advocacy, close partnership with treatment developers, and research funding to foster meaningful change for those living with EB. Each year, debra of America spends an average of $1.5 million on direct-to-patient programs and services to provide immediate relief to thousands of families across the country.
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On behalf of debra of America, thank you for your generous support of the
2024 dash4debra! A copy of your receipt will be emailed to you.
Please visit http://doublethedonation.com/debra to check if your employer has a Matching Gift Program. Matching gifts may double or even triple your contribution’s impact.