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You are invited to the 2026 Blossoms and Butterflies 5K!
Hosted by Katie Watson and Ledy Larson, this fun-filled family event brings the community together to raise funds and awareness for EB.
Whether you choose to run or walk, you set your own pace. Every mile makes a difference!
Join us on Saturday, May 9th at 7:30 a.m. at Tropical Park. Let’s run (or walk) for EB!
Proceeds from this event will help fund critical research, provide medical supplies to families, and improve patient access to EB specialists. Many individuals living with EB must travel out of state for care, and often, insurance does not cover the specialized supplies they need. debra of America is the only national nonprofit solely dedicated to supporting the EB community through research funding and vital programs and services.
W H A T I S E B?
Epidermolysis Bullosa (EB) is a group of rare disorders caused by a mutation in one of 18 genes. People with EB share the lifelong challenge of extremely fragile skin that blisters and tears from minor friction or trauma. The list of medical complications EB causes may be long and often requires multiple interventions from a range of medical specialists. While there is still no cure for Epidermolysis Bullosa (EB), hope is no longer out of reach. Thanks to decades of tireless work and collaboration, treatments are now available that help ease some of the most painful and debilitating symptoms of certain types of EB. As of 2025, three therapies have been approved by the U.S. Food & Drug Administration, marking a historic shift in the landscape of care and a powerful step forward for individuals and families affected by this devastating disease. here.
W H A T I S D E B R A O F A M E R I C A?
Our mission is to improve the lives of those impacted by Epidermolysis Bullosa (EB) — “The Worst Disease You’ve Never Heard Of.” We integrate direct-to-patient programs and services, education, advocacy, close partnership with treatment developers, and research funding to foster meaningful change for those living with EB. Each year, debra of America spends an average of $1.5 million on direct-to-patient programs and services to provide immediate relief to thousands of families across the country.
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On behalf of debra of America, thank you for your generous support of the
2024 dash4debra! A copy of your receipt will be emailed to you.
Please visit http://doublethedonation.com/debra to check if your employer has a Matching Gift Program. Matching gifts may double or even triple your contribution’s impact.