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Become a Sponsor of the 12th Annual dash4debra
Partner With Us to Make a Difference for Individuals and Families Living with EB
debra of America invites you to become a sponsor of the 12th Annual dash4debra, a beloved community event hosted by Megan Gosselin that brings together families, friends, and supporters to raise funds and awareness for Epidermolysis Bullosa (EB).
Taking place on Sunday, August 23, 2026, at Lake Forest Academy in Lake Forest, Illinois, dash4debra provides a unique opportunity for businesses and organizations to demonstrate their commitment to the rare disease community while gaining meaningful visibility among participants, families, and supporters.
Since its inception, dash4debra has raised hundreds of thousands of dollars to support debra of America's mission of improving the lives of those affected by EB through programs, services, advocacy, and research.
Your sponsorship helps make this event possible while directly supporting individuals and families living with EB. Sponsorship opportunities are available at a variety of levels and include valuable recognition before, during, and after the event.
Join us in making a lasting impact on the EB community. Together, we can help provide hope, support, and resources to those who need them most.
For sponsorship information or to become a sponsor, please complete the sponsorship form below or contact debra of America at [email protected] for additional details.
What is EB?
Epidermolysis Bullosa (EB) is a group of rare disorders caused by a mutation in one of 18 genes. People with EB share the lifelong challenge of extremely fragile skin that blisters and tears from minor friction or trauma. The list of medical complications EB causes may be long and often requires multiple interventions from a range of medical specialists. There is no cure for EB but there are treatments that help alleviate some of the debilitating symptoms of certain types of EB.
debra of America’s work led to the groundbreaking U.S. As of 2025, three therapies have been approved by the U.S. Food & Drug Administration marking a historic shift in the landscape of care and a powerful step forward for individuals and families affected by this devastating disease. To learn more please visit here.
What is debra of America?
Our mission is to improve the lives of those impacted by Epidermolysis Bullosa (EB) — “The Worst Disease You’ve Never Heard Of.” We integrate direct-to-patient programs and services, education, advocacy, close partnership with treatment developers, and research funding to foster meaningful change for those living with EB. Each year, debra of America spends an average of $1.5 million on direct-to-patient programs and services to provide immediate relief to thousands of families across the country.
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