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Please join us for the 2026 Flutter for a Cure 5K!
Hosted by ER nurse Alysha Cannon, this family-friendly event is dedicated to raising critical funds and awareness for individuals and families living with Epidermolysis Bullosa (EB),
a rare and painful genetic skin disease, in support of debra of America.
Whether you run, walk, or cheer from the sidelines, every step you take helps provide hope to those living with EB. Your participation helps fund groundbreaking research, essential wound care supplies,
patient support programs, and access to specialized medical care for children and adults facing the daily challenges of this devastating disease.
Together, we can make a meaningful difference while enjoying a morning of community, compassion, and fun. Bring your family and friends, celebrate the strength of the EB community, and help create a future with better treatments and, one day, a cure.
Saturday, October 24, 2026
9:00 a.m. – 11:00 a.m.
Quail Ridge Park
Wentzville, Missouri
Every step matters. Every dollar makes an impact. Every participant brings us closer to a world without EB.
What is EB?
Epidermolysis Bullosa (EB) is a group of rare disorders caused by a mutation in one of 18 genes. People with EB share the lifelong challenge of extremely fragile skin that blisters and tears from minor friction or trauma. The list of medical complications EB causes may be long and often requires multiple interventions from a range of medical specialists. There is no cure for EB but there are treatments that help alleviate some of the debilitating symptoms of certain types of EB. debra of America’s work led to the groundbreaking U.S.
As of 2025, three therapies have been approved by the U.S. Food & Drug Administration marking a historic shift in the landscape of care and a powerful step forward for individuals and families affected by this devastating disease. To learn more please visit here.
What is debra of America?
Our mission is to improve the lives of those impacted by Epidermolysis Bullosa (EB) — “The Worst Disease You’ve Never Heard Of.” We integrate direct-to-patient programs and services, education, advocacy, close partnership with treatment developers, and research funding to foster meaningful change for those living with EB.
Each year, debra of America spends an average of $1.5 million on direct-to-patient programs and services to provide immediate relief to thousands of families across the country.
Progress
Leaderboard
Official Flutter for a Cure t-shirt. T-shirt included in select registration levels.
Material is very soft cotton and ideal for physical activity.
Checkout
On behalf of debra of America, thank you for your generous support! A copy of your receipt will be emailed to you.
Please visit http://doublethedonation.com/debra to check if your employer has a Matching Gift Program. Matching gifts may double or even triple your contribution’s impact.