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Please join hosts Ashley and Ricky Lynch for Hope in Her Footsteps, Leah’s 2nd Annual Walk for EB Awareness,
as they walk in honor of their daughter, Leah who lives with RDEB.
Leah’s family is proud to partner with debra of America for this special event as we come together to raise awareness and vital funds for those living with Epidermolysis Bullosa.
Last year’s walk had an amazing turnout, and we hope to make an even bigger impact this year. Let’s show up, show love, and make a difference for Leah, for all EB warriors, and in memory of those we have lost whose courage and legacy continue to inspire our mission.
Saturday, November 7, 2026
Mary C. Brown Public Library
Lake Butler, Florida
8:00 a.m. Start Time
Walk with us to spread awareness about EB and help support debra of America’s programs, services, and research benefiting individuals and families affected by EB.
REGISTRATION IS FREE
T-SHIRTS WILL BE AVAILABLE FOR PRE-ORDER FOR $25
W H A T I S E B?
Epidermolysis Bullosa (EB) is a group of rare disorders caused by a mutation in one of 18 genes. People with EB share the lifelong challenge of extremely fragile skin that blisters and tears from minor friction or trauma. The list of medical complications EB causes may be long and often requires multiple interventions from a range of medical specialists. There is no cure for EB but there are treatments that help alleviate some of the debilitating symptoms of certain types of EB. As of 2025, three therapies have been approved by the U.S. Food & Drug Administration, marking a historic shift in the landscape of care and a powerful step forward for individuals and families affected by this devastating disease. To learn more please visit here.
W H A T I S D E B R A O F A M E R I C A?
Our mission is to improve the lives of those impacted by Epidermolysis Bullosa (EB) — “The Worst Disease You’ve Never Heard Of.” We integrate direct-to-patient programs and services, education, advocacy, close partnership with treatment developers, and research funding to foster meaningful change for those living with EB. Each year, debra of America spends an average of $1.5 million on direct-to-patient programs and services to provide immediate relief to thousands of families across the country.
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