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Born two months early, Corinna Alice Claire “CC” Yodice was diagnosed with Recessive Dystrophic Epidermolysis Bullosa (RDEB), a rare genetic condition that makes her skin extremely fragile. Now two, CC is fierce, beautiful, and silly, bringing joy to her family despite painful blisters, daily wound care, and frequent bandage changes.
Culvers and the Yodice family invite you to Butterflies and Bubbles: “Soaring to find a cure for EB” in honor of CC. Proceeds benefit debra of America, supporting people and families affected by EB through care, education, advocacy, and research.
What is EB?
Epidermolysis Bullosa (EB) is a group of rare disorders caused by a mutation in one of 18 genes. People with EB share the lifelong challenge of extremely fragile skin that blisters and tears from minor friction or trauma. The list of medical complications EB causes may be long and often requires multiple interventions from a range of medical specialists. There is no cure for EB but there are treatments that help alleviate some of the debilitating symptoms of certain types of EB. debra of America’s work led to the groundbreaking U.S.
As of 2026, three therapies have been approved by the U.S. Food & Drug Administration marking a historic shift in the landscape of care and a powerful step forward for individuals and families affected by this devastating disease. To learn more please visit here.
What is debra of America?
Our mission is to improve the lives of those impacted by Epidermolysis Bullosa (EB) — “The Worst Disease You’ve Never Heard Of.” We integrate direct-to-patient programs and services, education, advocacy, close partnership with treatment developers, and research funding to foster meaningful change for those living with EB.
Each year, debra of America spends an average of $1.5 million on direct-to-patient programs and services to provide immediate relief to thousands of families across the country.
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© Copyright 2026, debra of America, All Rights Reserved | The Dystrophic Epidermolysis Bullosa Research Association of America, d/b/a debra of America is a registered 501(c)(3) tax exempt organization. | All Trademarks and Brands are Property of Their Respective Owners. debra of America does not endorse any drugs, tests, or treatments that we may report. This website is for informational purposes, always check with your physician before adopting any medical treatment. | EIN: 11-2519726
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