Loading....
We fight Epidermolysis Bullosa (EB)
"the worst disease you've never heard of"
Get Updates
Be the first to hear about our latest action alerts and events, and stay in the loop on the work our organization is doing every day with the support of people like you.
We will tell you the latest in research initiatives and how our work influenced legislators as well as pass on personal stories from those with the disease.
We will never share your email address with anyone, and you can unsubscribe any time.
Sorry, we're not targeting any representatives in your district. But, you can still help!
Edit this message to tell users that can't take action (because of their location) how to contribute. For example, consider adding a link to a petition or donation page that you have created, or add social sharing options so that these supporters can help get the word out on social media.