Please join host Ashley and Ricky Lynch as they walk in honor of Leah, their daughter who lives with RDEB, to raise awareness and vital funds for debra of America. Let’s come together to show up, show love, raise funds, and make a difference. Leah is the only person in Union County living with EB. We will walk for Leah, for all those living with EB today, and in memory of those we’ve lost whose courage and legacy fuel our mission.

Join us on Saturday, November 8th at 8: 00 a.m. at the Union County Public Library, Lake Butler, Florida
8:00 a.m.  Walk with us for Leah, for the EB Community, and for hope.

REGISTRATION IS FREE
BRACELETS WILL BE AVAILABLE FOR PURCHASE AT EVENT

W H A T  I S  E B? 

Epidermolysis Bullosa (EB) is a group of rare disorders caused by a mutation in one of 18 genes. People with EB share the lifelong challenge of extremely fragile skin that blisters and tears from minor friction or trauma. The list of medical complications EB causes may be long and often requires multiple interventions from a range of medical specialists. There is no cure for EB but there are treatments that help alleviate some of the debilitating symptoms of certain types of EB. debra of America’s work led to the groundbreaking U.S.  As of 2025, three therapies have been approved by the U.S. Food & Drug Administration, marking a historic shift in the landscape of care and a powerful step forward for individuals and families affected by this devastating disease. To learn more please visit here.

W H A T  I S  D E B R A  O F  A M E R I C A? 

Our mission is to improve the lives of those impacted by Epidermolysis Bullosa (EB) — “The Worst Disease You’ve Never Heard Of.” We integrate direct-to-patient programs and services, education, advocacy, close partnership with treatment developers, and research funding to foster meaningful change for those living with EB. Each year, debra of America spends an average of $1.5 million on direct-to-patient programs and services to provide immediate relief to thousands of families across the country.