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Join Us for the 12th Annual dash4debra
Run, Walk, and Change Lives for EB
Hosted by Megan Gosselin, this beloved family-friendly event brings the community together to raise funds and awareness for Epidermolysis Bullosa (EB), one lap at a time around the Lake Forest Academy track. Whether you choose to run, walk, or cheer from the sidelines, you can participate at your own pace and set your own distance. Every lap and every dollar helps support individuals and families living with EB.
Children under 5 participate free of charge, and strollers and wheelchairs are welcome. For the safety and comfort of all participants, we kindly ask that pets remain at home.
Join us on Sunday, August 23, at 9:00 a.m. at Lake Forest Academy and help us make a difference for the EB community. We hope to see you there!
Proceeds from dash4debra will help fund critical research, provide medical supplies to families, and improve patient access to EB specialists. Many individuals living with EB must travel out of state for care, and often, insurance does not cover the specialized supplies they need. debra of America is the only national nonprofit solely dedicated to supporting the EB community through research funding and vital programs and services. Since it began, dash4debra has raised over $385,000 to support debra of America’s mission, thank you for being part of this impact!
What is Epidermolysis Bullosa (EB)?
Epidermolysis Bullosa (EB) is a group of rare genetic disorders that cause the skin and mucous membranes to be extremely fragile. Even minor friction, heat, or trauma can result in painful blisters and open wounds.
EB can also affect the mouth, eyes, esophagus, and other internal organs, leading to complications that impact nutrition, mobility, and overall health. The condition varies widely in severity, from mild blistering on hands and feet to life-threatening forms that affect multiple body systems.
There is currently no cure for EB, but symptom management, wound protection, and multidisciplinary care are essential for maintaining comfort and preventing complications. With proper support and expert care, many people with EB lead fulfilling lives despite the daily challenges of the disease.
What is debra of America?
debra of America's mission is to improve the lives of those impacted by Epidermolysis Bullosa (EB) “The Worst Disease You’ve Never Heard Of.”
We integrate direct-to-patient programs and services, education, advocacy, close partnership with treatment developers, and research funding to foster meaningful change for those living with EB.
We envision a future where the burdens of EB are eased and eradicated, empowering those affected to lead lives free from the challenges of EB.
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On behalf of debra of America, thank you for your generous support of the
2026 dash4debra! A copy of your receipt will be emailed to you.
Please visit http://doublethedonation.com/debra to check if your employer has a Matching Gift Program. Matching gifts may double or even triple your contribution’s impact.